Cleared for a return to Florida

Jett's latest immunotherapy infusion

Jett’s latest immunotherapy infusion

After a single round of chemotherapy back in June, the doctor switched her to immunotherapy due to concern over neuropathy (the loss of feeling in her fingers).  She has received 4 immunotherapy infusions.  Last week she underwent a round of tests to assess the effectiveness of the immunotherapy.  Jett was understandably nervous about what the tests would reveal.  If the treatments were not effective it would be a death sentence.  And we would not be able to return to Florida for the winter.

Fortunately, the assessment was generally positive: while her cancer is not in remission and may never get there, the progress to date has been “miraculous.” Yes, the doctor actually said “miraculous.” All tumors have shrunk in size. When asked if she was well enough to return to Florida for the winter, he said “absolutely.”

So we are currently working out the details of how to get there and how to continue treatments uninterrupted. It is likely that I will drive the Corolla south with Rusty aboard (it is really the only way to get him there), leaving Oct 23 and arriving Oct 26. Because I won’t be towing the RV and won’t be doing much sightseeing (except, perhaps, visiting the Civil War battlefield in Chancellorsville), I won’t treat it as a “trip”.

I will load as much stuff in the car as will fit without crushing the dog. Anything I can’t fit (like my new golf clubs) will go into the storage unit in MA.

Jet will follow, via a nonstop JetBlue flight, arriving Oct 27. She will likely be accompanied by her sister Christine. She will stay with Christine while I am away.

At this point the greatest immediate threat to Jett’s health is her weight. She has lost a couple more pounds and is now in danger of dropping below 90. The doctor is concerned, of course, as she is approaching starvation. He told her if she can’t gain weight she will have to go on an IV feeding regimen. She is now taking the threat seriously and is eating every chance she gets, with the aid of a new anti-nausea medication.

She is not out of the woods, but there is now reason to believe that the forest is not as dark and dense as it once appeared.

She is now looking forward to getting back to Ft Myers – especially since the nighttime temperatures in Massachusetts are now dipping into the 40s.

Categories: Health, Preparation/Planning | 1 Comment

“Judgment Call” by J.A. Jance

Copyright 2012 by J.A. Jance. Published by HarperCollins, New York.

This is one of Jance’s mysteries featuring Joanna Brady, sheriff of Cochise County, Arizona. This is a long series – this is apparently the 15th – so it is very popular. Sheriff Brady is petite, so she isn’t capable of overpowering anyone like Jack Reacher or John Puller can do when necessary, but she is tough. She commands well and has a clear head about what needs to be done.

There are several plots here. The main one involves the murder of the principal of Bisbee High School, found in the desert with four gunshot wounds. This is followed the next day by the murder of a woman who is in charge of an artist conference and painting exhibition. What is the connection? Is there a connection?

The secondary plot involves the death of a copper miner many years before. This one ultimately involves the death of Joanna’s father who was once a miner who became sheriff. This is ancient history. This plot helps advance Joanna’s character and history, but smacks of being thrown in to give the book more weight.

I liked the characters in the book and think that Jance is a fine author. But the plot seems thin to me. The motive of the murderer (spoiler alert: the murders were committed by the same person) seems very thin, on the verge of unbelievable. The motive in the cold case is more believable but less central to the book. And in both cases the identities of the culprits were uncovered due to actions of outsiders rather than due to the diligence of the police. To me this makes the plot rather unsatisfying.

5 out of 10.

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Text messages from my truck

The truck, after texting me

The truck, after texting me

My mother, bless her heart, never learned how to use her cell phone to send text messages. It was just beyond her technical abilities. My truck, on the other hand, sends me text messages frequently. Does that mean that my truck is smarter than my mother? I certainly hope not.

Actually, it is not the truck that sends the messages; it is the Verizon Hum device that is plugged into the truck’s diagnostic port. It constantly monitors the truck’s status and sends me regular reports on the quality of my driving (quite good, thanks for asking). It also sends me a text message when it detects something amiss.

A week ago it sent me a message to let me know that the battery voltage was getting low – not a surprise as the truck had not been started since the middle of June. It warned me that the voltage was so low that the engine might not start. This was a problem as I really needed the truck to be in running condition in the event that a hurricane approached. So I sent off a note to the resort office offering $20 to anyone who would take my truck key, go to my site and start the truck, then let it run for 20 minutes. I got no response.

As luck would have it, I received an email two days later from our new neighbor that we have never met. His name is Joshua and he wanted to let me know that he was in Ft Myers and that everything looked good on our site. He sent me some photos (see the two attached) that not only showed that both the site and the RV were in good shape but induced some serious homesickness in both Jett and me. He also said that he would be there for 2 weeks and was there anything that he could do for us while he was there?

Hmmm… an offer too good to ignore. So I asked if he would mind getting the truck key, try to start it and let the engine run for 20 minutes if it should start. He said he would be happy to do so, reported that the truck started right up, let it idle for 30 minutes and returned the key to the office. He also declined my offer of a $20 payment.

I feel much better now. I know that the truck will start in an emergency and will almost certainly start when I get back to Ft Myers.

Joshua – I owe you!

The RV at rest, photo by Joshua

The RV at rest, photo by Joshua

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Jett’s folding wheelchair

Lightweight wheelchair

Lightweight wheelchair

While still in Florida, it became painfully obvious that Jett was going to need a wheelchair – first to get her north on the train and then to get around to her medical appointments and social engagements. The main requirement was that it be light – I didn’t want to wrestle with a full-size wheelchair on the train. It also had to be easily folded so that I could fit it in the trunk of our Corolla. Durability, though nice, was not a major requirement as it was unclear how long it would be needed or how often it would be used.

It also had to be available within 5 days in Flagler Beach Florida. One obvious source was WalMart. They offer, via their website, a wide variety of wheelchairs and all of them can be had within a few days via pickup at a local store. I ordered the Drive Lightweight Steel Transport Wheelchair. Price was not a huge factor, but the price on this one – under $120 delivered – solidified its place at the top of my list.

I picked it up at the local WalMart – about 10 miles from our campground – the day before we boarded the train and was immediately impressed by its quality construction, its light weight (15 lbs) and the ease of folding it for transport. Jett says it is very comfortable. We have used it a lot and continue to like it very much. A good decision and a purchase that has made our difficult summer just a bit easier.

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Scrubs

Scrubs – the TV series – ran for 9 seasons, from 2001 to 2010. It was popular, of course – any series that runs that long has to be popular – but I was never a regular viewer. This summer it has become an entertainment respite. Jett has been spending a lot of time in bed and the cable TV has been minimal. So when we bought the first season of Scrubs at the New Salem Library yard sale in July and enjoyed it, we started looking for the second season. Then the third season. And the fourth. We are currently awaiting delivery of the seventh season DVDs.

One unique thing about Scrubs is the use of fantasy. John Dorian (J.D., played by Zach Braff) is forever imagining things. For example, it occurs to J.D. that residents and surgeons have a natural competitiveness, like two gangs, so cut to surgeons and residents dancing down the hall of the hospital, like the Jets and the Sharks. And lots of visual gags, many involving Janitor (Neil Flynn). But I hadn’t fully appreciated the role of music in the series. Every episode has some good music, sometimes featuring original artists. But the entire cast – with the exception of Braff and Flynn – are really fine vocalists. Singing doctors. The modern version of singling cowboys, I guess.

In any case, I am now a big fan of Scrubs. I would have to rank the series ahead of Friends and pretty close to Cheers in terms of its comedic quality.

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“Summer of ’68” by David Benjamin

Copyright 2018 by David Benjamin. Published by Last Kid Books, Madison WI.

I have mentioned before that the author is my bff from high school. I have read all of his books and have followed his career closely. He is, in the words of my sister-in-law who has also read at least one of his books, a “wordsmith.” He really knows the language (actually, several languages) and can craft a fine story. I think his best book is his collection of essays, Almost Killed by a Train of Thought, but this novel now ranks second, close behind.

The story centers on a summer camp in the woods of Wadsworth County, WI, in the summer of 1968. The protagonist, Franklin Roosevelt Cribbs, or “Cribbsy”, is an 18-year-old counselor, a freshly-minted high school graduate who is eagerly anticipating his entry into college. But for the summer he is responsible for “Smith 3”, one of the cabins housing 16 11- to 15-year old boys with an artistic streak, most of them refugees from the darkest, most dangerous streets of Chicago. Besides the counselors, the camp is run by a contingent of “Work Campers” who are, without exception, paroled felons doing community service to prove that they are trustworthy enough to be allowed back into society. The elements are in place for a rather “interesting” summer. Which also happens to be the summer of turmoil: the murders of MLK and RFK and the police riot that characterized the Democratic National Convention in Chicago.

Layered on top of this societal and political angst is the presence of a 14-year-old girl who becomes deeply infatuated with Cribbsy. Pathological kids, felonious Work Campers, a hippy-dippy camp director and a jail-bait teen bent on seduction. What could go wrong?

A lot.

Cribbsy skirts with statutory rape, the kids of Smith 3 come close to mob murder and Cribbsy discovers, eventually, that he is not nearly the complete loser that he had convinced himself he was. This is all related in a compelling sequence of chapters, each focusing on one of the more interesting characters in camp, punctuated by entries in Cribbsy’s journal and poems penned by the girl. The dialog is realistic, the stories believable. And it is all wrapped in some pretty insightful commentary on the state of America in the summer of ’68.

The commentary on racial relations were, in my view, particularly insightful. One example: the young girls at Camp Nantoka liked to run their fingers through the hair of Cribbsy (blond) and the other counselor in Smith 3 (redhead). They had never felt soft hair. I had never thought that soft hair would appeal to young black girls, but it rings true. Did the author have that experience in real life?

That question – which of these experiences were derived from David Benjamin’s life? – was in the back of my mind as I read the book. I, after all, spent most of that summer with him (and he was not a camp counselor that summer). I even worked at the Oconomowoc Canning Company with him, so I know that those experiences that he included in the book were true because I shared them with him. There were many other scenes in the book that I know are autobiographical, but I won’t mention them. You can read the book knowing that some of it is true. But which parts?

7.5 out of 10.

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Rockport and the “George Stone discount”

Rockport Harbor and Motif #1

Rockport Harbor and Motif #1

Jetty

Jetty

Roy Moore Lobsters

Roy Moore Lobster Co

Jett and I traveled to Rockport MA a week ago, to visit her mother’s grave and to generally enjoy Rockport, her childhood summer home and still one of our favorite places on the planet. Her brother, George Stone, lived there his entire life. He was a bit of a character (an understatement) but a lovable one. Longtime residents of Rockport all remember him fondly. This worked in our favor, unexpectedly, as we had lunch at Rockport’s famous Roy Moore Lobster Company, which is more retail lobster shop than restaurant, but does have a few picnic tables out back where you can sit and devour the lobsters you purchase inside. We did just that. I ordered the lobster roll and a cup of fish chowder and Jett had a couple of shrimp cocktails. When time came to settle the bill, we were informed that we were receiving the “George Stone discount” which slashed our tab from over $30 to just $20. A pleasant and unexpected bonus to our day in Rockport. All I can say is thank you, George, for being so lovable.

Bearskin Neck

Bearskin Neck

Lunch

Lunch

We also strolled the length of Bearskin Neck, the artsy-fartsy road to the jetty, consumed some ice cream, watched the waves and bought some candy at Tuck’s Candy Factory. The usual stuff. We hadn’t been to Rockport in 2 years and found that very little had changed.

And that’s a good thing.

Jett resting after ice cream

Jett resting after ice cream

Categories: Family, Food, MA, Places | 2 Comments

Extended Stay America

Our summer home

Our summer home

Yesterday was out 60th day in residence at Extended Stay America (ESA) in Westborough MA. The plan is to stay 90 days, then head back to Florida, if Jett is well enough to go back home. I think the chances of that are pretty good – better than 90%. While she is still very ill with incurable cancer, the treatment that she has received, first in Florida and then in Massachusetts, has stabilized her condition and, barring a sudden growth in her existing tumors or further metastasization, I think she will be able to travel.

It will be good to be back “home” in our RV. It is not a matter of space – our handicap-accessible room at ESA is larger than our RV; it is a matter of having all our “stuff” back. As I mentioned previously, we have done our best to clone our RV life by buying appliances, utensils, clothing and other things that we needed for a long-term stay, but there is still a lot we left behind. Most notably clothes. We are getting by with a minimal wardrobe. If we stayed until the cold weather hit we would have to buy a LOT of new, warmer clothing.

I will give a review of our stay at ESA, but first let me remind you why we are here rather than in a campground, in our RV. The main reason is that Jett was much too weak and ill to make the 2-week trip north in the truck. I could have gone back down and brought the RV north, alone, but we needed to be close to UMASS Memorial Hospital for treatment and the closest RV campground is over 45 minutes away. Plus Jett would have had to navigate the difficult RV steps, which would be an ordeal. And there would be no cost benefit – every campground within an hour is more expensive than ESA’s “introductory rate” (about $1300 for 30 days).

The trip north in the RV, alone, would have been an ordeal even if the truck had performed well. Given the trouble that I encountered while taking the RV back to Ft Myers, the expected 2-week trip could easily have become a 3-week trip.

So why ESA? We had other short-term stay options, including renting an apartment on a 3-month lease. The problems with those options are: (1) expense (a fully-furnished apartment in the Boston metro area is over $2,000 per month), (2) the dog (most furnished apartments don’t allow pets), (3) utilities (I would have had to arrange for electricity, cable TV and maybe gas), and (4) timing (I had to get a place quickly and some options might not be available for weeks). Just the thought of spending days running around looking at apartments was daunting. The chances of finding a suitable place were small. Meanwhile, the ESA option – perfectly suitable – was there for the taking. No hassle, no fuss. I toured the property two days after we arrived in Worcester and booked it the next day. Easy, peasy.

So what did we get for our money? A spacious, wheelchair-friendly studio apartment with a very comfortable queen bed, a small sofa, a handicap-accessible bathroom with a very nice shower, a kitchen with 2-burner stove, microwave, refrigerator and dishwasher, air conditioning and cable TV (pretty basic but with 2 Showtime channels and NESN so I can watch all the Red Sox games). We were also provided with a puny set of cooking gear – 2 pots (no covers), 2 plates, 2 cups, 2 bowls, 2 spoons, 2 knives and 2 forks. We went out and supplemented that cooking stuff pretty quickly. After 60 days we are comfortable.

The courtyard

The courtyard

The smoking patio

The smoking patio

Our ESA home also comes with once-a-week housekeeping (we can get fresh towels and linens on other days, by trading used for fresh at the desk), an in-building laundromat (not cheap but effective), a small patio in an attractive courtyard where Jett can smoke and meet others sharing that vice and enough surrounding greenery to keep Rusty interested. We can also get mail delivered to us at ESA.

What doesn’t it have? First and foremost, there is no pool. Apparently one existed until recently (Google Earth shows one), but it has been filled in. There is also no on-premises restaurant or even one within walking distance. There is, however, an Owen O’Leary’s not far away which is adequate if not spectacular in its culinary offerings and has some very nice craft beers.

Combine the amenities, the cost and the location and the result is a very acceptable residence for our enforced vacation in Massachusetts.

Jett has even suggested the possibility of staying longer than 90 days, primarily to continue treatment at UMASS, which she likes very much. But the “introductory rate” has a 120-day limit after which the price just about doubles. And once you get into November the weather starts getting pretty chilly. So there is a slight possibility that our stay could extend to Oct 21 rather than Sep 21. But beyond that? Ain’t gonna happen.

Jett in our minimalist kitchen

Jett in our minimalist kitchen

I don’t know whether to mark this as a plus or a minus, but we have met some very interesting people in our 60 days here. As it is an “extended stay” facility, it doesn’t attract a lot of overnight travelers. Mostly the clientele consists of people staying for a week or more or, like us, one month or more. A lot of the tenants are in town on short-term work assignments. Some are waiting for housing to become available. A few of the more interesting ones are desperate cases who are one small step away from homelessness.

Very comfortable bed

Very comfortable bed

Nice shower with grab bars galore

Nice shower with grab bars galore

The saddest case was John, boyfriend of April and stand-in father to two very nice young children. We first became aware of John on our first weekend at ESA when he was playing with the kids loudly – and somewhat roughly – for hours on a nice afternoon, down in the patio area which is directly under our window. Jett met him shortly thereafter while on a smoke break. John bummed one of her cigarettes – the first of many. He would have you believe that he was pretty well-to-do, with two recent-model vehicles, but was always scraping for money for food. He had severe medical issues which had him relying heavily on pain pills and was disabled, on SSI. It quickly became obvious that he took more pain medication than was prescribed and that something inevitably happened that he ran out of pills before his next batch became available. One time it was his “daughter” knocking the pills into the sink and down the drain. Another time it was someone breaking into his car and stealing them. He was always desperate for more pills, was always trying to find a way to get more prescribed. And he drank. Heavily. Pills and booze are never a good combination, particularly when you are driving for Lyft (it was actually April who got the Lyft job and he was just “helping out”, but she never drove) and had no valid license. Toward the end of his month at ESA he was arrested for DUI and driving without a license and had his car towed. He had to sell his TV to get it back. He was a source of daily drama at ESA and was eventually evicted, along with April and the two kids. We liked the girlfriend and the kids, but had to wonder why she had taken him on. Sad case, but memorable.

Categories: MA, Places, RV Living | Leave a comment

“Foreign Affairs” by Stuart Woods

Copyright 2015 by Stuart Woods. Published by G. P. Putnam’s Sons.

This is one of Stuart Woods’ many books featuring Stone Barrington, lawyer superhero. There are a bunch of these and this is #35 in the series.

I am somewhat facetious when I call Stone a “lawyer superhero.” But his character approaches superhero stature. He is, besides a lawyer, an investor, a pilot, a detective and a lover. In this book he plays piano. I suspect that if the situation needed him to weave a Hopi rug, he could do it.

And that is the problem. He is just not believable. Yeah, I know – I am a fan of Jack Reacher and John Puller who come pretty darn close to superhero status. But the difference is this: they don’t get calls from a cardinal, the head of MI6, the Director of the CIA and the President of the United States offering their assistance in resolving Stone’s problem. And the director of MI6 is one of his lovers. She had better take a number, apparently.

So I didn’t much care for the character. What else didn’t I care much for? Oh, yeah – the plot.

Stone is an investor in a hotel project in Rome which is being shaken down in a protection racket by an Italian mafioso recently booted from the United States. Now it is not clear what this guy expected to get out of this pretty penny-ante scheme. Certainly nothing to justify kidnapping Stone’s current squeeze. Certainly no benefit that justified killing a couple of guys that he thought might sell him out for the reward that Stone posted. Certainly nothing that justifies the intense pressure placed on him due to the concerted efforts of all of Stone’s friends in high places.

And yet he persists. But Stone takes him down in the most ridiculous way – by posing as a pianist in a jazz quartet playing at the bad guy’s party. The takedown consists of calling the guy onto stage, pointing a gun at him and arresting him. Where is the drama in that?

This is the first Stone Barrington novel I have read. And probably the last.

3 out of 10.

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Worcester Art Museum

Interior courtyard with mosaic

Interior courtyard with mosaic

The Worcester Art Museum will never be put in the same category at The Louvre or even Boston’s Museum of Fine Arts. However, for an art museum located in a small city, it isn’t bad. Better than I expected.

Let’s start with the building itself. It is rather grand. Neo-gothic, I think, with a sunlit interior courtyard that features a very large Roman mosaic on the floor, plus a few more lining the courtyard walls. Rooms off of this courtyard contain some very nice collections of ancient art, including Greek, Roman and Chinese artifacts. The exhibits are arranged roughly in chronological order, so as you move clockwise around the courtyard you encounter art that is less and less ancient. However, all of the exhibits on the main floor are pretty darn old.

The second floor is reserved for paintings. Again, moving clockwise the paintings become more modern. There are not a lot of modern pieces, just a room of impressionist works. But for a small museum the variety and quality of the works are impressive.

The museum also has a rather large library, which I found surprising, and a cafe which I didn’t sample but which was very attractive, with an exterior courtyard.

Overall, pretty nice. Expensive for the size – I paid the $14 senior price and younger adults would pay $16. But it is free the first Sunday of every month. If you like art and find yourself in Worcester MA, take a look.

Greek statues

Greek statues

Chinese bust

Chinese bust

Medieval armor

Medieval armor

Impressionist room featuring Gauguin

Impressionist room featuring Gauguin

Categories: Adventures, MA, Places | 3 Comments